May is National Hep C month
May is National Hep C month
May is national hepatitis C month, please pass on my video and help me support those like my Mother who contracted this disease. (through a blood transfusion)
THANK YOU
Affected but not infected
Affected but not infected
Affected but not infected, there I was at a Hepatitis C conference at the steel workers hall in Sudbury On Canada, I was there to support my mother who has been a victim of this disease for 27 years, I was disgusted with the advertisements (posters) showing drug abuse as the main way to contract this disease.
Flanked by family, my Mom told her story at a press conference held in honor of Hepatitis C month. The event was organized by the Circle Support group, which provides peer support for those with the virus. This disease is misinterpreted; It's not only a "druggie" disease; this silent epidemic has many ways of contracting it; unfortunately my mother received this disease through a blood transfusion that was suppose to save her life; now due to the hospitals negligence she obtained tainted blood and her life has been cut shorter.
My mom is in the later stages of Hepatitis C. She has cirrhosis of the liver, and treatments have been ineffective. She has no one else to turn to medically there is nothing no one can do for her. Pain killers are ineffective and not numbing the pain; leaving her with no comfort.
Day to day life for her includes chronic fatigue. There's days where her whole body just aches, and when her liver becomes inflamed, it's putting pressure on the other organs. Life with Hepatitis C - I don't wish it on anybody.
Where are the posters showing blood transfusions, tainted blood and or blood products? I feel people should be more informed about this disease. My Mother is a fighter, I envy her, she is in the last stages of this disease, which she received through a blood transfusion; bad unscreened blood, hospitals negligence that gave my mother this disease.
Her health is deteriorating, she has no family doctor and or health plan. I hope that people out there educate themselves about this disease and that the government step up and deliver on their promises to compensate all Hepatitis C individuals, You see I may not be infected, but I am affected by this disease and it hits me harder knowing that my daughter may not be blessed to know my Mother for a few more years, as she is now already attached to her!
Hepatitis C; A disease that my mother has been battling 27 years; We as adult children, show comfort and are always there for her, I may not be infected; but I am affected and I try to support my mother in anyway I can, I have been spreading awareness for this disease, I talk openly to my 3 year old daughter, and make sure she understands when Grandma is too tired to play, My Mom is a hero, She is strong!
We have to be supportive, and just be there for her, understand her and love her, Like she was here for me, now I am repaying her for all she has done, She is dying and I have come to terms with that, while other family members may be in denial, My two brothers and I are there for her, and will make sure she is remembered in our children, and that this disease is known and people know what hepatitis C is all about. My daughter and I made a video as there was a contest we came in third place, I didn't do the video for the money, I did it to support my mother and to send a message out there to others to get tested, to educate themselves, that there are websites filled with information; hepcontario.ca is one of them and my video can be viewed on utube "affected but not infected".




